Journal of Social Sciences and Humanities  
Manuscript Information
 
 
A Narrative Medicine Pilot Study Using the McGill Illness Narrative Interview (MINI) with Patients Suffering from Nephropathy and on Dialysis
Journal of Social Sciences and Humanities
Vol.2 , No. 3, Publication Date: Nov. 12, 2019, Page: 62-65
457 Views Since November 12, 2019, 360 Downloads Since Nov. 12, 2019
 
 
Authors
 
[1]    

Venusia Covelli, Faculty of Psychology, E-Campus University, Como, Italy.

[2]    

Linda Figini, Faculty of Psychology, E-Campus University, Como, Italy.

[3]    

Antonio Santangelo, Faculty of Psychology, E-Campus University, Como, Italy.

[4]    

Francesca Memini, Italian Society of Narrative Medicine (SIMEN), Catania, Italy.

[5]    

Giuseppe Bonforte, Nephrology and Hemozdialysis, Beata Vergine Regional Hospital, Mendrisio, Switzerland.

 
Abstract
 

The present study, that belongs to a wider project intended to the introduction of Narrative Medicine with patients suffering from nephropathy and on dialysis (NeD), aims to explore the experience of patients suffering from NeD and to address physicians in the use of the McGill Illness Narrative Interview (MINI) when they collect patients’ illness narratives in their Narrative Medicine clinical practice. We conducted a narrative research study in October 2015 with the cooperation of an Hospital in Como (Italy). Ten patients suffering from nephropathy and on dialysis were interviewed and their illness narratives were collected using the Italian version of MINI. Then, a thematic analysis was realized referring to the disease, illness and sickness dimensions in relation to main sections of MINI interview. Different perspectives through which these patients feel the experience of living with a chronic pathology along with illness, disease and sickness dimensions emerged and were discussed. The study has pointed out the MINI narrative interview as a useful instrument to investigate the patients’ experiences suffering from a chronic illness and it provides a number of issues clinicians and medical professionals might integrate into the clinical practice when they use this narrative interview.


Keywords
 

Narrative Medicine, Narrative Research, Chronic Nephropathy and Dialysis


Reference
 
[01]    

Fioretti C, Mazzocco K, Riva S, Oliveri S, Masiero M, Pravettoni G. Research studies on patients’ illness experience using the Narrative Medicine approach: a systematic review. BMJ Open 2016; 14; 6 (7): e011220.

[02]    

Greenhalgh T. Cultural contexts of health: the use of narrative research in the health sector. Copenhagen: WHO Regional Office for Europe; 2016 (Health Evidence Network (HEN) synthesis report 49).

[03]    

Mettifogo M, Burrai F., Dorigo V., Zampieri C. Strategies and effectiveness of narrative medicine in renal patients: a literature review. Part 1. G Tec Nefrol Dial 2017; 29 (4): 281-284.

[04]    

Brunori F, Dozio B, Colzani S, Pozzi M, Pisano L, Galassi A, Santorelli G, Auricchio S, Busnelli L, Di Carlo A, Viganò M, Calabrese V, Mariani L, Mossa M, Longoni S, Scanziani R. Intervista con il paziente dializzato: sensazioni, emozioni e paure. Giornale Italiano di Nefrologia 2016: 33 (2)–ISSN 1724-5590.

[05]    

Makaroff KL, Sheilds L, Molzahn A. Stories of chronic kidney disease: listening for the unsayable. J Adv Nurs 2013; 69 (12): 2644-53.

[06]    

Mettifogo, M., Burrai, F., Dorigo, V., & Zampieri, C. (2017). Strategies and effectiveness of narrative medicine in renal patients: a literature review. Part 1. Giornale di Tecniche Nefrologiche e Dialitiche, 29 (4), 281-284.

[07]    

Mettifogo, M., Burrai, F., Dorigo, V., & Zampieri, C. (2018). Strategies and effectiveness of narrative medicine in renal patients: a literature review. Part 2. Giornale di Tecniche Nefrologiche e Dialitiche, 30 (1), 50-54.

[08]    

Charon R. Narrative medicine: honoring the stories of illness. Oxford University Press, Oxford: 2006.

[09]    

Alcauskas M, Charon R. Right brain: reading, writing, and reflecting: making a case for narrative medicine in neurology. Neurology 2008; 11; 70 (11): 891-4.

[10]    

Italian National Rare Disease Center (Centro Nazionale Malattie Rare). Conferenza di Consenso Linee di indirizzo per l’utilizzo della Medicina Narrativa in ambito clinico-assistenziale, per le malattie rare e cronico-degenerative. I Quaderni di Medicina de Il Sole24Ore Sanità (Allegato al N. 7, 24 feb.-2mar. 2015), 2015. Available at: http://old.iss.it/cnmr/index.php?id=2562&tipo=82. Retrieve at 12th March 12, 2019.

[11]    

Covelli V (Ed.). Medicina Narrativa e Ricerca. Prospettive teorico-metodologiche multidisciplinari per la raccolta e l’analisi delle narrazioni dei pazienti (Narrative Medicine and Research. Multidisciplinary theoretical-methodological perspectives for the collection and analysis of patients’ narratives). Lybellula University Press: Lecce, Italy: 2017.

[12]    

Groleau D, Kirmayer LJ, Young A. The McGill Illness Narrative Interview: an interview schedule to elicit meanings and modes of reasoning related to illness experience. Transcult Psychiatry 2006; 43 (4): 671-91.

[13]    

Craig S. R., Chase L., Lama T. N. (2010), Taking the MINI to Mustang, Nepal: methodological and epistemological translations of an illness narrative interview tool, in “Medical Anthropology”, 17 (1), pag: 1-26, doi: 10.1080/13648471003602566.

[14]    

Galdas P. M., Bindy H., Kang K. (2010), Punjabi Sikh patients’ cardiac rehabilitation experiences following myocardial infarction: a qualitative analysis, in “Journal of Clinical Nursing”, 19, pag. 3134-3142.

[15]    

KLEINMAN A. (1988), The illness narratives: suffering, healing and the human condition, New York: Basic Book.

[16]    

HOLLOWAY I., WHEELER S. (Eds) (2010), Qualitative Research in Nursing and Healthcare. Third Edition, United Kingdom: Blackwell Publishing.

[17]    

Covelli V, Figini L. The Mini Italian version available at https://www.mcgill.ca/tcpsych/files/tcpsych/mini_italian.pdf. Retrive at 12th March 12, 2019.

[18]    

Riessman C. K. (2008), Narrative Methods in the Human Sciences, Thousand Oaks: Sage.

[19]    

Schick Makaroff, K., Sheilds, L., & Molzahn, A. (2013). Symbolic representations of living with chronic kidney disease. Nephrology Nursing Journal, 40 (6).

[20]    

Brunori, F. F., Dozio, B., Colzani, S., Pozzi, M., Pisano, L., Galassi, A.,... & Viganò, M. (2016). The interview with a patient on dialysis: feeling, emotions and fears. G Ital Nefrol, 33 (2), 1724-5590.

[21]    

Molzahn AE, Bruce A e Sheilds L. Learning from stories of people with chronic kidney disease. Nephrol Nurs J 2008; 35: 13–20.

[22]    

Ferraro G. Teorie della narrazione. Dai racconti tradizionali all'odierno storytelling (Theories of narration. From traditional stories to today's storytelling). Carocci Editore, Roma, Italy: 2015.

[23]    

Bury M. Chronic illness as biographical disruption. Sociol Health Illn 1982; 4 (2): 167-82. PubMed PMID: 10260456.

[24]    

Mattingly C. The concept of therapeutic 'emplotment'. Soc Sci Med 1994; 38 (6): 811-22. PubMed PMID: 8184332.

[25]    

Frank A W. The Wounded Storyteller. Body Illness, and Ethics, Chicago University Press, Chicago, IL; 1995.





 
  Join Us
 
  Join as Reviewer
 
  Join Editorial Board
 
share:
 
 
Submission
 
 
Membership